Mio

lol hi this be my kingdom

OMFGGGGGGGGGG
tyki - oh gawd WAT
[info]murbot
MY BROTHER IS GETTING HIS LUNGS TONIGHT HOLY CRAP
I'M LIKE COMPLETELY SHAKING RIGHT NOW AND ALMOST IN TEARS
THIS IS SO NERVE-WRECKING HE IS GETTING ANOTHER CHANCE AT LIFE!

Writer's Block: Listen to This
Mio
[info]murbot

If a friend asked you for some new music recommendations, what would you suggest?


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Depends on their music tastes, but most likely I would recommend some of my favourite bands such as Within Temptation, Nightwish, Lacuna Coil... Yet, I'm kind of the only one in the group of friends I have that like those bands, so I'm sure it won't hurt to recommend them.. Or perhaps The Fray if they don't listen to that band, because that band has the deepest lyrics along with a beautiful voice

Or classic rock bands, like, Pink Floyd, The Beatles, Guns N Roses, Rolling Stones, Sex Pistols. Those are great.

Hi, DO I HAVE A MESSED UP MIND?
Mio
[info]murbot
“So, what did you expect?” A silent whisperer who is known to have a relatively strong connection to the spiritual world, meaning as in lost spirits who have gone far away waiting to be reincarnated, some spirits whom remain angry at their time of death, others with a feeling of purity and freedom within their soul.



Drenched in open wounds, I was. The deep cut from the glass mirror behind, I was pushed against the mirror; resulting wounds in the back of my head. It’s surprising that I have not even died from blood loss; yet, I have a strong feeling that I will be a lost spirit sometime soon.



The sharp end of the black and dark purple scythe is pressed against my aching throat, blood dripping slowly from the scythe’s sharp end. The sound of the ticking clock is getting louder and louder by the second; my heart is pounding loudly, and my breath was heavy.





“I expected nothing but faultless torture.” Gasping for breath in between of each word said, I attempt to move my fingers slowly. The unbearable pain from getting my fingers forced into the sharpest needles caused me to fail at my attempt on escaping.



My vision was fuzzy; my stomach felt as if it was utterly twisted. Nonetheless, my psychological being remains tough, meaning that I refuse to give up; even if I have the sense that I am going to lose to this battle, even if I am tied down and cannot do anything to save myself, I know that if I have the intelligence to go through it all, I may not become a lost spirit at all.



“Those eyes of yours show that you’ve got some guts.” The whisperer’s mischievous voice dug deep inside my skull, chilling me to the bone.



“My eyes show pure determination, as if I’ll become a spirit lost in a far-away world. You pathetic scum!” Forcing the tone of my voice, attempting to threaten the whisperer in particular ways, after several attempts to threaten this whisperer, they never showed an expression of threat, I have come to the conclusion that this whisperer is unique among the others.



“Whisperer number #26, what is your name?” I asked, meanwhile the voice of mine is breaking.

“My name, you ask?” They glared at me evilly, putting more pressure against my throat with the scythe.

“How inconsiderate of you to ask of my name, foolish child.” A cold, harsh voice; their heavy, angered breath along with their angered eyes, dug through my skull once again; doing nothing but bringing traumatizing memories of the past, as well as for the things I strongly regret, too. I tried to speak; unfortunately my voice broke already; as well as for my mind, all due to these painful, traumatizing memories.



Liquid streams ran down my cold, pale cheeks; trembling even more, my heartbeat is faint.



Now I realize that this is something I cannot defeat myself, and for once and for all; I have been dead in the past few hours in these whisperer’s eyes.



“Farewell, little sister.” The whisperer cackled, ripping my throat out, as well as for tearing my soul apart.



I did not become a lost soul, an angry soul, or a soul of purity. I am a soul who has been shredded to pieces, a soul that signifies destruction.


I was wrong all along …
Tags:

Rose
Mio
[info]murbot
Once there lived a girl, with a sparkling, white sundress. She wandered aimlessly by the deep blue sea-shore, in the search of a beautiful shell in order to take pictures of, she had an eye for the beauty of photography and the fascinating sights that each photograph can treasure for a very long amount of time.

With no luck, she was not able to find a shell out of her tastes, after sitting in the shore drawing in the sand beside her with her fingertips, oblivious to what she was drawing; the strong waves from the ocean washed it all away. The girl’s dress was soaked wet from the ocean’s strong wave.

She sighed in grief, her feet sunk deep in the sand as she stood there gazing into the sight of the ocean waves. Another wave crashed in the shore, releasing the tie on the girl’s hair due to its strong motion, the girl’s hair was let down to upper-back length. Her eyes rolled as she shrugged, walking towards her tie-dye towel, snatching the cord of her camera, wrapping it around her right wrist, swinging it around cautiously; not wanting for it to fall onto the ground.

She walked through her usual pathway, which almost seemed like a forest; it was surrounded by trees, plants, flowers, with some muddy puddles here and there. For once, she observed the surroundings of this pathway to home, she crossed an area where laid very lovely roses, she paused, only to look at the area where there are many flowers. Her pupils grew wide, and to her surprise, she has spotted a beautifully fully-bloomed rose. She walked right up to the pink rose, held onto it softly with her palm to only smell its scent.

She thought for a bit, and turned to look at the camera that was tied with its cord to her wrist. She let out a bright smile, placed her hands on the roots of the rose, avoiding its thorns and as soft as possible, she ripped the roots of the rose and held onto it.

She ran towards the ocean shore once again, only to place the rose in the deep-blue water, as she zoomed in attempting to get the perfect shot, she succeeded with a smile. She proceeded in taking different shots in different angles of the beautiful rose that floated in the ocean.

Time flied past and the sun has already begun to set, she held the rose tightly, not wanting to let it go. She took her belongings back home, into the pathway once again.

The girl wiped her sandals on the rug that read “Welcome” in front of entrance door; she opened the door and rushed to grab a glass of water to place the rose in, so it won’t wither in such a short amount of time.

After softly placing the rose on the glass, she gazed into the beauty that the rose holds, its scent, its colour, its petals, as well as for the slight sight of a water drop on top of a petal.


As days have passed, the rose’s colour began to fade slowly, no longer having its natural colour from when it was first spotted. The girl continued taking shots on every sight she fancied, that matched her tastes. She looked at the rose for the very first time since that day she picked it out, noticing its beauty fading away. She did not care of it whatsoever and headed to bed.

That very night, the rose’s colour completely faded, leaving only a gray complexion of the rose, no sight of other colour. The girl, whom slept peacefully for some time, opened her eyes suddenly, as if her eyes were forced open, only to find that the light was dim. She sat up in a fast motion, breathing heavily, grabbing onto her chest which was highly painful. She tilted to the right, and before her eyes was the same pathway, with the same surroundings from when she first found that rose. Her body moved by itself, her mind went from pondering, to screaming to stop. The forest’s atmosphere in the pathway gave the girl an uneasy feeling, causing her to fall on her knees, covering her mouth with one hand while the other hand held her up from falling flat. She coughed up an indisputable amount of blood, her whole entire body shook.

The girl had enough strength to stand back up on her own two feet, as her mind screamed louder and louder to quit moving, her body had no response to the brain’s command. She shook, thinking it was only a mere dream and nothing more. Her feet leaded to where she once picked the fully-bloomed rose; yet, there was no rose, despite of having the same exact appearance from when she picked up that rose.

A soft, yet broken hand tilted her chin. The girl saw an amorous view of a lady, her appearance almost compatible to even label as “Goddess”. The “Goddess” had long, wavy, pink hair that would flow with the wind. She had a long, white dress that almost looked like the girl’s sundress; yet, it was longer, with pink tones added onto it.

The “Goddess” softly whispered into the girl’s ear; “This is the Rose’s Revenge.” She shut her eyes, raising her hands toward the sky; taking control of the pathway’s forest, as the girl pleaded for salvation, the plants held her tight, incapable of fighting the plant’s. The “Goddess” forced a smile, as tears stream down from her eyes. “I do not exist just for your pleasures.” The “Goddess” held the root from where she was taken from, she petted the thorns as her hands bled from the thorn’s sharpness. The girl cried, with her eyes as big as it can be. The “Goddess” opened her eyes, glaring at the girl; the “Goddess” kissed the thorns softly, “Go.” She spoke; the thorns took allowed themselves to be controlled like puppets, killing the girl in less than a second.
The plants let go of the girl, letting her body fall; the “Goddess” leaped to capture the body, on her knees, the “Goddess” smiled to the girl as she let her fingers brush through her hair, “Death is . . . a very painful thing, isn’t it, pretty little girl?”. The “Goddess” gave a tender kiss to the young girl on the lips, the wind grew heavily and fast; and a rosebud was born in the same area where the fully-bloomed rose once lived.

The “Goddess” closed her eyes; the girl’s body broke into many petals, flying to where the newly born rosebud is. She smiled, placing her palm softly on the bottom of the rosebud, whispering warm and kind words that once was said to receive good luck once having received words from the “Goddess” “May you live happily as a rose, little girl; and may you have learned a valuable lesson.”

The “Goddess” smiled, her body began to break out, as it began to shatter, she whispered: “One day . . . you will be a wonderful rose, even more wonderful than I ever was.” Her whole entire body shattered into thousands of gray petals, which turned to dust, and flew away with the wind.
Tags: ,

I wave once again.
Konata & Kagami - WUT
[info]murbot
I really, REALLY have no idea why the freak I keep switching journals/blogs or whatever. Well, I've been writing a lot, as in, deep thought (my feelings) in my blogger. http://strawberryxkiwii.blogspot.com/

I dunno if I'll still be postin' here since I really have not many friends on LJ, I'll most likely post once in awhile. Hopefully.

Hope..?
Konata & Kagami - WUT
[info]murbot
So today I went to an orientation for school today. It's basically to show you how High School is, take a look at the clubs and sign up for it for next year, looking at the classrooms and students artwork. Performances too, dance class; choir; stomp; flags & cheerleading. The flag dancing is what I found most appealing, cheerleading was pretty awesome too. I've never seen such performances in my life, so this is definitely a first.

Yet, I was very paranoid over the fact that it was so crowded. I was pretty much acting bitchy to my mother (I'm not going to lie) I kept clinging on to her. It was really.. like.. no idea, it got me so nervous to be around so many people that I almost cried. I went to the other side of the gym which had all the clubs and the information about it. I wanted to join a sport but I have to ask my doctor about it since most sports have physical contact. (I was looking forward into joining either soccer or softball.). My mother pushed me into joining the anime club, scared I was into approaching them. They were really nice to me and told me all about it and what they do. They were pretty much the only group that actually talked to me when I was too scared to approach them. I'm excited for starting High School now, and making new friends.

Also, the DVD thing when they showed how the school was certainly gave me hope about going. Perhaps things will turn out fortunate and not how I think it will end up like. A friend I had that was a classmate of mine in 6th grade (which I stayed there for a month or so.) recognized me and approached me, she talked to me a bit. I couldn't help but chuckle that someone who I once consider a really good friend got expelled from middle school because of her doing drugs. Haha, some people are so pathetic these days. I don't think she'd really be the type to do all that though. In fact, she was pretty much the only one who ever bothered to visit me a lot of times when I stopped going to school because I was really sick.

Maybe then she will be a good friend in the future. Who knows? She's the only one that has ever cared.

Writer's Block: It's the Little Things
Mio
[info]murbot

What's a little thing you do every day that brightens the lives of those around you?

Sponsored by Nature Made


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I ask how they are doing.

. . .
Mio
[info]murbot
When I wish I could forget some of the traumatizing things in the past, they have made an impact on my life; by teaching me hard & painful lessons.

Writer's Block: Spoilers Below the Cut
the veronicas - heart
[info]murbot

Have you ever ruined the ending or given away plot developments in a book, movie, or tv show by telling someone who hasn't seen or read it what happens? Has anyone ever done this to you?


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I've done it before on purpose, lololol.

And a friend of mine gives me a ton of spoilers and spoils some animushows , after I tell her to stop she just keeps talkin' and talkin'.. ....


Introduction!
Mio
[info]murbot
 
 
I don't know how to begin with my introduction.. and this would be a pretty lame introduction cause most introductions have pretty graphics and colours, sparklies and everything else.

My name is Maria, I mostly go by "Mur, Murry, Mawia" or any other nicknames my friends give me. I am 15 years of age, though I'd have to say I am mature than most that are in my age group in the area I live. I've experienced a lot in life; just like any other person has. But I believe I have experienced more than others -- I suffer from Cystic Fibrosis; which is a genetic life-threatening disease that has no cure. Read my previous entry for more information on Cystic Fibrosis. (It's a paper I've been working on a bit to help out other people my age with CF at the hospital, learning how to cope & such. I still need to keep working on it..)

I have received a double-lung transplant on July 28th, 2008. Which was one of the greatest things that has ever happened in my entire life, and I am eternally grateful for this second opportunity in life, and now I can make my own plans, goals and everything without having to worry much about my life.. as long as I take care of myself and follow the doctor's orders!

I have a brother, whom I adore SO much and also suffers from Cystic Fibrosis. He is 20 years old and will turn 21 on March 29th. I also have a sister who.. I don't speak about much unless she does something VERY idiotic which would irritate me.
My parents are divorced, and my father lives in Puerto Rico with my sister while I live.. Somewhere with my mother, brother & stepfather.

I'm a really nice person, I can be giving, and especially am a decent listener. I can give either good or bad advice at times, but I try my very best to give advice when asked for.

I try my very best to be honest as possible, and in the nicest way. But sometimes I get too honest that it may hurt other's feelings. Truth hurts, though -- lies hurt worse once you've discovered that you have been lied to.

I'm insecure, and can be pessimistic, shy, and stuff. But once I'm comfortable I'm loud, talkative, and open.

I value friendship, honesty, & love.

I absolutely ADORE my friends -- and I hope I can meet them someday (I have no social life, you see.. I'm always at home because before since I was pretty sick and didn't go to school... and now, I have to wait a year until I can go to public school.. for the very first time.) 


But anyway! I love my friends, they make my day and not a day passes where I do NOT even laugh or smile. They are part of the reason as to why I'm still here, the main reason would be my doctor & nurses that give a big reason why I'm here today -- specifically my surgeon who has given me these spanking new lungs!

I LOVE to write, write out my feelings, write lyrics or poems ; or whatever you describe it! I try to improve my writing from music, researching specific words, studying, reading and all that stuff. That way I could have a higher vocabulary level so I can write in a more... unique way!

I love to listen to music; my music tastes mainly goes towards to Rock/Metal/Alternative/Goth and some pop. My favourite bands are: 
Within Temptation, The Veronicas, Nightwish, Muse, Trapt, Thousand Foot Krutch, Korn, Skillet, Finger Eleven, Disturbed & a lot, lot more to list that I won't even bother listing them all.

My favourite colours are Turquoise, Teal, Gray, Silver, Black, White, Royal Purple & Jade

My interests are; ... GO LOOK AT MY PROFILE, FOOLS. Lol

Oh yeah, I cuss a lot... especially when I'm pissed off.

And um, what else to add -- hmm?

My favourite drink ever is.. Coffee! I've always loved coffee since I was a young'in.
However, I'm not an addict who drinks like every single day.. (I wish though.)

My birthday is on December 14th, and I plan on getting a job at my favourite coffee shop once I turn 16 and am able to get a job. I'd like to have job experience, and save up money for college and stuff. Learning to be independent..

I want to travel around the states, perhaps around the world if it was possible. I have doubts about it because of my CF -- though I've asked my doctor if I could travel sometime outside the states when I was older and she said it'd be fine but we'll see what happens.

I want to travel to London, Japan, Australia and other places!

When I'm older, I want to move to Boston, Massachusetts and get a job as a Pharmacist or a Songwriter. I could be both, maybe!

I watch anime, not a whole lot though. My favourite anime would have to be Shakugan no Shana & Clannad!

Oh, and I'm ALWAYS on MSN.. I mean, always! So if you'd like to chat and get to know me a bit more better then let me know I'll add you on MSN!











(no subject)
Mio
[info]murbot
Teeeeeeeest.

(no subject)
Mio
[info]murbot
Well, my last livejournal I don't want to use it anymore because I don't really like the username and such.... and erm, I guess that's all. I  wanted a new start  I guess. My previous journal was 
sparklesglow.livejournal.com/profile

Cystic Fibrosis (IN PROGRESS)
Mio
[info]murbot
I'm sort of planning into making something like an advice column or like a F.A.Q for fellow CFers at the hospital to at least help answer some of the questions they may ask, or something. It may not be quite good at first but hey I'll try. I'm kind of tired at this very moment so it may not be as good and I can't really open my mind up to think of some more questions, so here we go!

F.A.Q

What is Cystic Fibrosis?
Cystic Fibrosis is a life-threatening disease that causes to build up mucus to your lungs, blocking its airway causing it harder to breathe, this disease may also affect its digestive system meaning it cannot digest its food normally unlike other healthy humans. Therefore enzymes are required to be taken at a prescribed amount in order to digest its food well when eating. This disease also, because of blocking the airways and making it harder for the patient to breathe. Nebulizer/Inhaler treatments are required in order to clear out the airways and block out the mucus, making it quite easier to breathe. The life expectancy of Cystic Fibrosis patients are between the ages of 35-37, but as medical services advance within time the life expectancy increases slowly. Unfortunately there is no cure for CF, as researches are working their hardest to discover a cure for this disease, there is still hope to succeed.


What are ways to treat Cystic Fibrosis?
There are different ways to treat Cystic Fibrosis, one is that you *MUST* do your nebulizer/inhale treatments as instructed by your physician in order to maintain healthy and out of the hospital, preventing frequently hospital visits is bliss, and it will maintain good health in your body for quite awhile. Do the correct amount of times when doing your respiratory treatments, do your vest (Vest that is hooked up to a machine that goes on your chest to shake off the sticky mucus off your lungs), and most important of all - take your pills, go to the doctor's when needed and when discovering the symptoms of feeling ill - notify your physician as soon as possible!


Coping with Hospital Stays/Dealing with CF - Emotionally & Mentally

Is it normal to feel distress/isolation when dealing with hospital stays and such?
I believe that it is completely normal to feel this way when you have to be stuck at the hospital, considering that they mostly tend to put you on an isolation room, and sometimes family may not come visit as much. From my personal experience, I was always in isolation and the only family member that would visit me is my mother - not as often, though. It is clearly understandable why my mother didn't visit as much as she wanted to. We do live pretty far away from the hospital AND considering that I also had brother who had CF that my mother would have to keep an eye on, so she could not come as often as much. Though she did know I was in good hands and visited me at any moment she'd can.

Back to the question, it is very normal to feel this way. It's very sad to feel this way, but do keep in mind that YOU are not the only one feeling this way! Just remember that you are not alone whatsoever because there are other patients just like you who has had to deal with such long hospital stays and they have felt that way - especially CFers like YOU!


About how long does it normally take for you to feel like yourself again?
I'd have to say it really does depend on how well you're doing, how your lungs are functioning, how sick you were in the beginning. It all takes time, and nobody really knows when you'll be back to feeling like your ol' self!

What can you do when feeling sad because you have to put up with CF and its hospital stays?
There are tons of things you could really do! As for me - I'd always have a chat with a nurse since they were always willing to talk to you if they had at least some free time on their hands, or I'd write out my feelings which really helps a ton ! I myself tend to write to what it seems like lyrics and it really explains part of how I feel, it's really a wonderful relief for me and it makes me feel better in the end. Here are some suggestions to distract yourself!

- Consult your CLS into giving you some ideas, brainstorm! You can come up with many ideas if you're into the arts. There's so many to choose from in what you can do when it comes to arts & crafts!

- If you're into electronics/video games, and have a game system of your own then there you go, you can freely entertain yourself and keep your mind busy by playing your video games with the DS/PSP or whatever else you may have!

- You can ALWAYS call up a friend to talk to! If you've got contact with a friend or family member I'm sure that they'd be willing to hear from you and what you have to say!

- Write out your feelings! That is something that I've done many times during my hospital stays and when I feel that way, I believe that it is very helpful to write out how you feel when feeling sorrow, because that way you'd be able to let out every single piece of your mind into a paper, and if you'd wish - you can keep it treasured for future reference ! I myself keep stuff I write just to see how things were back then and how I felt. I believe it makes me a stronger person!

- If you'd wish, you could always talk to a nurse who you are very fond of. I'm so sure that they'd really be able to have a chat with you especially with how you feel.




How can I tell my friends that I have to live with CF and being sick all the time?
You could always tell them at any time and at any moment when you'd feel like it, I believe that it is very important to let a friend know what you go through, so they can understand you more and what you go through - that way they wouldn't have to question so much about your coughing, your absence, and why you have to take medicine & do respiratory treatments. But remember, it is your choice whether to tell them or not, but I recommend you letting them know so they can understand you a lot better. CF is a major part of your life so it's best to tell them!


About how long are hospital stays required?
To my knowledge - for the average CFer, hospital stays vary between 2-3 weeks. It primarily depends on how sick you were when you first came in, and the most important is how well the antibiotics are treating the bacterias you may have, and how your Pulmonary Functions are doing, most of the time - antibiotic treatments DO last for 2-3 weeks, but if they switch it around you're in for another 2-3 weeks.

From my personal experience, my hospital stays were mostly around from 3 or up to even a month and a half. Like I have mentioned, it mostly depends on your PFT's, how well you may be feeling, and when you and your doctor decide if you are well enough to go home.


What happens if you get more sick than you normally are?
There is a simple answer to a question like this:
Consult your physician, let them know how you may be feeling, and if possible ; you're most likely to end up being admitted.

If you get very sick "lung-wise", and your pulse ox may be low - as in between 90-93, then it will be inclined into requiring an oxygen canula, meaning that it will give you enough oxygen to help you breathe at least a little better, and with that - your pulse ox will be where it's supposed to be.


Do people tend to treat patients with CF differently than others?
I sincerely hope that we will be treated the same way they treat others, but I am quite sure that the friends we have treat us the same.
There is always more than one person out there who treats us like others. I myself have friends who treat me the same way they treat their friends.


What happens if I get thoughts of wanting to die/give up in everything?
First thing's first - you MUST consult your physician OR talk to a relative, close friend, nurse. There are times where CFers get these thoughts a lot, from my knowledge at least. But the support we get from people that love us always makes us stronger, that is something I believe in - and I hope you will too. It is always helpful to let someone know right away about this; not only for your safety, but for your health. No CFer should deserve to be thinking that way, and so therefore accept any helping hand!

Lung Transplantation

What does it take to require a lung transplantation?
When a Cystic Fibrosis patient begins to develop severe lung disease, the FEV1's around it's 40 or below, requiring oxygen around the clock and such - or just your lungs being typically severe; then the lung transplant team will appear in the picture once it has been mentioned between you and your own doctor. If you have decided to go for the transplant, then you will eventually meet up with the transplant team for evaluation - and you'd have to do many tests in order to see how well your heart, lungs, and kidneys function, the types of bacteria in the lungs, and, because of the serious health care implications of transplantation, the person’s psychological well being.

What are the risks of lung transplantation?
Any kind of transplant has the same risks of a major operation - such as major bleeding, pneumonia, pulmonary edema; and also a chance of death to occur. But do KEEP in mind that it is only a mere chance of it happening, seeing as the surgeons and doctors we have are experts and highly experienced with lung transplants.

About how long does a lung transplantation take when the patient is being operated?
The amount of time for lung transplants are between 6-8 hours. It takes a few hours to get prepped for the transplantation, depending on where the set of lungs reside in, the surgeons have to take flight in order to see if the lungs are alright, later they will harvest,clean out the lungs. Making them good as possible for the recipient.


How long do you have to wait before being put on the list/waiting on the list?
The waiting time is unknown; more than hundreds of patients are awaiting for lung transplants in the U.S. Nearly every day there is a patient that is added to its list. Time varies. The transplant list is based on how sick you are, your blood type, size, age, etc. There are different kinds of patients that have currently been waiting for over a year or so.

From personal experience, I myself have waited 7 months to receive my set of lungs, my brother has waited 3-4 months, and a close friend has waited a year and a half after missing at least 3 transplant calls.

What is the difference you feel before & after a transplant?
Before a lung transplant, you may have felt weak, difficulty in breathing, chest pain, not able to walk. It is a massive difference when comparing on how you felt before and after the transplant. You feel more alive, filled with air, able to run, walk and do anything you've always wanted to do! Take caution, though - first year of transplant is ALWAYS critical. Your immune system is completely shut down so it is recommended to stay away from sick people and crowded areas.

At first, you may discover a bit of pain on the chest after the surgery; but that is very normal. You've just got cut open very deep to the point where it will cut off your nerves, it takes time to heal - and the pain is all worth it!

What are the things you have to do to keep yourself in good shape after the transplant?
It is HIGHLY recommended to follow as what your physician will instruct you to do - do NOT ever miss to take your pills. Always take them as said time and EVERY 12 hours. ALWAYS make sure you are taking the correct amount of milligrams when you are preparing to take your medication, as your medicines will often be changed around depending on how your medication levels will be. Make sure you are taking the correct amount, and the correct medication to, if you have any questions regarding on the medications ALWAYS call up your physician or even the transplant coordinator who are always willing to give a hand when it comes to your medications.

Exercising is definitely a must! Now that you've gotten new lungs it is time to work them out, work on your posture, regain some strength, use the muscles you have never been able to use before! You will be receiving Physical Therapy at least once or twice every week for a certain amount of time after you have received your lung transplant.

Another thing is that you must eat! Eating good and healthy foods with calories is definitely good for your health, you will end up losing some weight after you receive your transplant so eating will be very good for your health and your set of lungs! Don't worry, you will enjoy eating your foods unlike how it used to be before your transplant!

ALWAYS check your blood sugars before eating, and the rest check as instructed to. Always put insulin on before eating and if blood sugar is high, talk to your Diabetes Doctor to find out how much amount of insulin you will be needing per carbohydrates and how much you will be needing to correct yourself.


Friendship, Relationships & CF

How do I make/keep/maintain friendships when I can't see/interact/play with them because I'm isolated?
In your hospital stays, you cannot see your friends as much as you'd desire due to being isolated and trying to have a decent recovery without being interfered by bacterias coming from your friends. Bacterias come from anywhere and there are many different kinds of bacterias around this world, especially ones that your friends may have; all the bacteria on earth weigh more than the humans on earth and are far more numerous than us or even cockroaches, rats or other scourges. They may have been near a sick person and if they were to come visit you then those germs would be transferred to your sick body quickly, resulting your condition to worsen.

There are many ways to remain in contact with your friends while you're isolated. You can collect their numbers or give them your room's extension, you can use the hospital's laptop to keep in touch with friends via email or Instant Messaging.


How do I tell who my real friends are?
This is a normal question for the average teenager AND for Cystics too, but when it comes to CF patients then it is completely different when comparing to a normal, healthy, teenager!

What I think is that the way you tell who your real friends are is if they are willing to accept what you have to live with, and how you have to limit some of your time with them due to your hospital trips, the times that you have to do your medication, etc. They also MUST respect your decisions for the sake of your health, and should not ever pressure you into doing drugs, alcohol and the MOST important - smoking.

I believe that the real friends will always be there for you through your hardships, are always able to talk to you no matter what, and most of all -- love you for who you really are, not for who you are WITH the sickness nor based on how sick you are and they just become friends with you out of pity ; no. Real friends are the ones who RESPECT, SUPPORT, and are always there to contact no matter what.


What is the best way to tell my significant other about my illness?

What if my significant other does NOT want to accept the way I live?

What do I do if I get pressured into doing drugs/alcohol/smoking and sex?




I will be working on this later on, I'll have to think about questions or what else to write about.


- Coping with Death of other CFers
- How to handle between relationships/friendships and CF altogether
- My own life experiences
- What to Expect
- Road to Recovery
- Staying Positive
- Accepting help/support from close friends and family


I'd definitely appreciate suggestions on what to add and talk about. Thank you for whoever took the time to read this <3

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